09/06/2017

Online Community Helps Lupus Patients Find Social Support

The community allow patients and caregivers to share resources, experiences, insights

In an effort to provide a welcoming space for lupus patients and their loved ones, the Lupus Foundation of America and Inspire recently created a free online community called LupusConnect.

Launched on August 29, LupusConnect allows patients and caregivers to share their experiences and discover ways others are coping with the disease. Whether they are pregnant, newly diagnosed, or caring for someone who has the disease, members can join a wide range of lupus-related group discussions. Members can also befriend others online, customize their personal profiles, and message fellow members directly.

Mary Crimmings, vice president of marketing and communications for the Lupus Foundation of America, said the community provides a “social outlet” for patients who often feel isolated. “It’s timeless support,” she said. Because it is open 24/7, it is a convenient option for members who are too sick to leave home or who don’t have a local support group.

Please click here to read the complete article from Associations Now.